Countdown:
I seem to be counting up these days
instead of down, probably gaining twenty minutes since I last reported. My new
normal is still pretty abnormal but I at least have a better attitude about my
life. I still have hopes of being able to see theater movies or putting at one
of our practice facilities. Or even of braving the hoards at CostCo for a few
bargains (I love to shop.) So much depends on my fatigue levels. I want to
raise my energy enough to allow me to walk a hundred steps instead of fifty
before I need to sit down. And where do I sit down after those hundred steps? I
need a walker with an attached seat. Okay, so get a walker with a seat, Dummy.
What
else has brightened my outlook? For nearly a year I’ve been irregular, forcing
me to use too many laxatives which with frequent use are too hard on the organs.
But I learned the hard way this last year that irregularity can be not only
painful and frightening, but also depressing. I Googled irregularity and found
that several of my medications cause constipation: pain narcotics (I’ve taken
150 mg. of Tramadol every day for a year), Nifedipine (one of my heart meds), iron
pills (for my low red cell count), and Levothyroxine (which I take for
hypothyroidism, but it’s the condition, not the remedy, that causes
constipation). I quit taking the Tramadol and iron, and wonder of wonders, I’ve
found my youthful regularity. And my days are quite a bit brighter (as well as
lighter).
Countdown
complete. My clock now shows 11:22 p.m. What could cause it to begin moving toward
midnight? I think it has to do with what I consider an unacceptable quality of
life. What is or isn’t acceptable varies with every person and from one age to
another. For some, their religion might tell them that they must live as long
as possible, no matter what their circumstances. Life is precious, they say,
and we must keep life’s candle burning even if the flame is sputtering. These
are the followers of Dylan Thomas who suggests that we “rage against the coming
of the night.” Although I admire Thomas’ poetry, I don’t plan to hold on to
life when life is no longer worth living. When my quality of life is no longer
acceptable, I will find a way to end it. What is unacceptable to me? When I can
no longer read or write or listen to great music, when the Cardinals, Diamondbacks,
or the PGA no longer interest me, when I no longer do anything but sit or lie
and stare at a wall or ceiling, when I require full-time assistance for eating,
for use of restroom, for dressing and undressing, that will be the time for
bailing out. I have a living will stating that no artificial means of keeping
me alive are acceptable—no intravenous feeding, no breathing machine, and no
life support of any kind. Comfort care drugs? Yes. By all means, yes. If I have
a heart attack, do I want to be resuscitated? You bet. But if it leads to that
life support mentioned previously, no, a resounding no. What happens if my life
becomes unacceptable but I’m too incapacitated to do anything about it? If I
can’t find the stored opioid pills on my own and there’s no one around to find
them for me, I’ll just have to will myself to sleep. I think there are plenty
of examples of old folks doing just that. I’m a strong-willed person and I’m
sure I could manage it.
Maybe
most of the states in the next ten years will come to their senses and pass
right-to-die legislation to help people like me find their easy out. If not,
then my wife or one of my children will have to haul me to California or
Colorado.
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